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The myFace Blog

myFace patient Jack Demeter

What is Beauty? Ft. Jack Demeter

The life accomplishment I am most proud of is being voted captain of the Lafayette College basketball team. Growing up it was always a dream of mine to play Division 1 basketball. I achieved that goal when I was accepted to Lafayette. Over my four years, through blood, sweat and

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myFace patient Margaret Shair

What is Beauty? Ft. Margaret Shair

My college years were both the most arduous and wonderful years of of my life. I spent an ac-cumulated eight weeks in the hospital the summer that I turned twenty, for the first series of reconstructive jaw surgeries. Almost everybody was telling me to take time off from college to

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Facing Forward with Dr. Eduardo Rodriguez

What journey led Dr. Eduardo Rodriguez to become the Director of the Institute of Reconstructive Plastic Surgery and the Chief of the NYU Plastic Surgery Department? What road led to being a dentist, an oral surgeon, a micro-surgeon, a genius doing facial transplants? “I always liked the idea of being

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myFace patient Elijah

Elijah: A Memoir

My husband Nate and I feel like we are the luckiest parents in the world. A year ago, we found out that a birthmother had picked us to be the parents of a sweet little boy. We had just over three weeks to prepare for Elijah’s birth and to learn

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Little Miss Sunshine: Scarlett’s Story

We knew something was different about our daughter Scarlett almost immediately, but it was not until she was 3 months old that she was first diagnosed with right coronal craniosynostosis. In May 2005, she had her first surgery in Jacksonville, Florida and it was deemed successful. One lingering concern was

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myFace patient Kyle and his family

The O’Reillys

Kyle came into our lives 16 years ago on a beautiful, sunny day. Twelve hours later, at midnight, the doc-tors wheeled his incubator into my room so my husband and I could finally see him before they transported him via ambulance to the NICU @ NYU. I cried, thinking “he

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Volunteer Spotlights

Olivia I am a myFace volunteer because I believe in the life-changing opportunities that the organization provides each and every one of its patients. myFace is defined by passion, support, and love and I am fortunate to have filled my college break with such posi-tivity. I will forever cherish Races

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myFace blog more than meets the eye

More Than Meets the Eye

  Lauren Sharaby shares her story   Unlike most children, I was unable to commit to dance classes, gymnastic lessons, or the cheerleading squad. Instead, I was committed to being a patient. 16 years ago, my parents and I left our home at 5am for my first major surgery at

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myFace patient Nathaniel Newman and his family

Navigation Tools for Back-to-School

Since I started last year as Director of Family Programs at myFace and as a former patient myself, I have had parents reach out to me expressing concern for their child entering school for the first time. How will they handle the stares, the teasing, and the bullying? Will they

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Download TodayCraniofacial Care Guide for Parents

Downloadable content to help parents and families navigate the everyday issues that can accompany life with a craniofacial condition.

Information includes:

  • nutrition needs
  • building self-esteem
  • finding a care team
  • tips for healthcare appointments
  • and more!

Parent Guides Pop-up

Download the myFace Parent Worksheet

Enter your email address below to receive your copy of our Parent Worksheet to help prepare for your child’s medical appointment.