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The myFace Blog

myFace Adult Support Group to Launch a Podcast Series

Dina Zuckerberg, myFace Director of Family Programs, is working closely with members of the Adult Support Group to create and launch a unique Podcast Series in 2021. This series will inform and educate the general public about craniofacial differences and address the issues those with facial differences deal with as

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Our Donors Make it Possible

Working in collaboration with a fellow nonprofit, Welcome Baby, myFace will launch in 2021 a new program to provide Newborn Craniofacial Care Kits to mothers, containing the items they’ll need for their child in the first four weeks of life. The kit will have items such as a layette, baby

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Ask The Expert: Patricia Chibbaro

Patricia Chibbaro, RN, MS, CPNP, Pediatric Nurse Practitioner myFace Center for Craniofacial Care at NYU Langone Health, New York, NY., sat down with us to answer some important questions about choosing a craniofacial care team, when to choose your team, how important the psychosocial aspects of the team are and

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Thank you for allowing myFace to be Naomi’s second family.

“When I think of myFace, the first words that come to mind are acceptance and community. No matter where you’re from, who you are or what craniofacial condition you have, you have a place with myFace!” – Naomi Twenty-one-year-old Naomi was born with Van Der Woude Syndrome, which resulted in

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Our Youth Continue to Inspire

Hope may only be 13, but she is an extremely mature, compassionate and insightful young woman. Luckily for us, her bat mitzvah service was captured through Zoom and we had the privilege of hearing her moving speech. She didn’t want any gifts, just that her family and friends be there

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Craniofacial Introduction Letter to a new school

The more education and knowledge we impart, the more understanding and compassion we can achieve for those with differences. The following letter, written by myFace Star, Kiran‘s mom, is a must read. It introduces Kiran, who was born with Goldenhar Syndrome, to his new schoolmates, encouraging candor and dialogue. Moving to the area

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Jeff Smith hosts 8th annual Races for Faces

Special thank you to Channel 7 Eyewitness News meteorologist, Jeff Smith, for hosting our 8th Annual Races for Faces on Saturday, September 26th, where close to 400 individuals came together virtually to celebrate differences, promote acceptance and bring awareness to the craniofacial community. Thanks to your generosity, we raised more

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Races for Faces 2020

Contact: Stephanie Paul Phone: 917-922-5421 Email: Stephanie@myFace.org www.myFace.org Click here to download this press release as a PDF. NEW YORK, NY, September 22, 2020 – myFace, a leading nonprofit focused on providing comprehensive care, education, and information to help people with craniofacial differences lead full and productive lives, will host

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Thank You For Bringing Alonso’s Smile To Life

Alonso is the youngest of a loving, close knit family of 5 who came to the US from the Dominican Republic in 2015 when he was just a baby. Born with Crouzon Syndrome, he was later diagnosed with Craniosynostosis – two craniofacial conditions that resulted in the bones of his

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Download TodayCraniofacial Care Guide for Parents

Downloadable content to help parents and families navigate the everyday issues that can accompany life with a craniofacial condition.

Information includes:

  • nutrition needs
  • building self-esteem
  • finding a care team
  • tips for healthcare appointments
  • and more!

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Download the myFace Parent Worksheet

Enter your email address below to receive your copy of our Parent Worksheet to help prepare for your child’s medical appointment.