Blog

The myFace Blog

Summer 2020 Newsletter

You can download  a digital version of our summer newsletter here.  Thank you for bringing Alonso’s smile to life. Alonso is the youngest of a loving, close knit family of 5 who came to the US from the Dominican Republic in 2015 when he was just a baby. Born with

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Advocating For Your Child

Child Advocacy Webinar Lilliana Diaz-Pedrosa, Esq., Advocates for Children of NY Director, AFC Parent Center, gives an informative webinar on Advocating for your Child During the Homeschool Environment. Download Workshop

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Eating Healthy In Times of COVID-19

Eating Health In Times of COVID-19 Deborah Malkoff-Cohen, Registered Dietitian at the myFace Center for Craniofacial Care, at NYU Langone Health, provides useful tips and information on eating healthy for you and your family during this challenging time. She also addresses common feeding concerns that you may have for your

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Self Care in Times of COVID-19

Self Care in Times of COVID-19 Dr. Aileen Blitz, Team Psychologist, myFace Center for Craniofacial Care NYU Langone Health, gives an informative webinar and Q&A on useful tips and ideas about how to help cope during this challenging time with resilience, positive thinking and action. Download Workshop Additional Resources Coronavirus

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Families in Crisis Need Your Help Today.

With the world turned upside down in just a few weeks, I need to ask you for your support. Many of the myFace craniofacial families have been hit hard by the COVID-19 crisis and are experiencing tremendous financial stress. Some have recently lost their jobs. Two-thirds of the families we

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2nd Annual myFace Talent Show Brings the House Down!

On Sunday, March 1st, myFace hosted its 2nd Annual Talent Show – this year at Merkin Concert Hall in NYC. This show, made possible in part by generous support from The Warner Fund, provided a wonderful opportunity for a dozen of our myFace Stars – all impacted by craniofacial challenges

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It’s a new world… and myFace is always here for you.

Only a few short weeks after taking on the role of Executive Director with myFace in January, we find ourselves faced with an unprecedented pandemic. Each day we ask ourselves, “Where is the good in all this? How do we cope? When will it end?” We are deeply grateful to

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Kyle's Story - Rare Disease Day

Kyle’s Story

As told by Betsy, Kyles’s Mom: “Our son has a rare condition (we don’t like to use the word “disease”) called Nablus Syndrome. It is a micro deletion of the chromosome at 8q22 and is characterized as a mask-like facial appearance along with other distinct malformations of the body. As

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Download TodayCraniofacial Care Guide for Parents

Downloadable content to help parents and families navigate the everyday issues that can accompany life with a craniofacial condition.

Information includes:

  • nutrition needs
  • building self-esteem
  • finding a care team
  • tips for healthcare appointments
  • and more!

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Download the myFace Parent Worksheet

Enter your email address below to receive your copy of our Parent Worksheet to help prepare for your child’s medical appointment.