I actually have 2 holes in my body that most kids don’t have. There’s the stomach one, and I have one in my throat, too. They call it a Trach, which is short for tracheostomy.
I actually have 2 holes in my body that most kids don’t have. There’s the stomach one, and I have one in my throat, too. They call it a Trach, which is short for tracheostomy.
Craniofacial conditions can affect the teeth thus making home care and dental treatment difficult. A small mouth, difficulty opening wide, crooked teeth, and soft or irregularly shaped teeth can all contribute to a challenging situation. Starting tooth care early can prevent a lot of difficulties later on.
This Valentine’s day give back to craniofacial community while shopping for your special someone who deserves a sweet and unique gift.
Adolescence is a tough path for anyone, but for someone with the added complication of a craniofacial difference, it can be a minefield. Many people find solace in their hobbies, their family, their friends, and if they are lucky, a mentor. The relationship between mentor and mentee is a unique and special one, and for some children and teens, having a mentor can make all the difference in the world. As #NationalMentoringMonth comes to a close, read our latest blog featuring myFaceStar Kyle and his mentor Brian Kriftcher, of the organization the Stamford Peace Youth Foundation.
Establishing healthy eating habits and proper nutrition in your children is essential from a very young age, as these will impact their overall health and relationship with food for their entire lives. A well-balanced diet is vital for your child to develop both physically and cognitively, and what you teach your children about healthy eating habits can affect their body image in the future.
The world offers us lessons that we can choose to either grasp tightly or hold onto loosely. Some define us, while others might be mistakenly overlooked. Over the last couple of years, I realized that my younger, free spirited, high energy and above all, smiling self was just a dream.
In honor of Father’s Day, we want to recognize awesome fathers everywhere; in particular we would like to highlight Russel Newman, proud and dedicated father of Nathaniel. Nathaniel was born with Treacher Collins syndrome 12 years ago and has so far undergone 56 surgeries.
We are a family of five, with three terrific kids: McLaine, Jaimeson and Andy. McLaine is our 21-year-old college student. She was born without a facial difference. Our 18-year-old daughter, Jaimeson, was born with a severe expression of Treacher Collins Syndrome. Two years after Jaimeson was born, we adopted our
The day after I was born, a geneticist was able to inform my parents that I had a rare congenital birth defect, though they were unsure how to proceed. The condition caused the bones of my skull, mid-face and spinal column to be malformed, causing a multitude of other medical problems.
Every year, thousands of the children born with facial difference. Living with a craniofacial difference may create pressures and challenges that can affect one’s self-esteem. Here’s how you should know about these challenges so you can help empower your child to thrive in school. 1.Be prepared for transitions. Visit your
Downloadable content to help parents and families navigate the everyday issues that can accompany life with a craniofacial condition.
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