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The myFace Blog

Why We Give

Several years ago, Nick O’Neill and Mary Valiante found themselves in the happy position of being able to increase their charitable donations. After researching myFace and the work the organization does, Nick and Mary felt myFace would fit perfectly with their desire to support patients in need of facial reconstruction.

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myface blog father day reflection

A Father’s Reflection

I have a quick reflection about fatherhood and love that I’ve been meaning to write about for awhile. As a father one of the biggest things I learned about parenthood from my dad was to love and sacrifice. For different people those things manifest in an infinite number of ways.

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rebekah aversano 60 minutes

Face-transplant recipient meets dead donor’s sister

myFace is honored to provide critical psychosocial services to Richard Lee Norris on an ongoing basis including speech therapy, nutritional support and psychological counseling. myFace additionally provides airline transportation and housing to Richard when he travels to NYC for his medical appointments. He has become an integral member of the

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myFace blog Thing about Wonder

The Thing about Wonder

By: Eloise Diaries So I finally did it… I finally read Wonder. I just sat down on Sunday morning while Landon nuzzled next to me on the couch and read it. For years now, when folks hear about Landon’s syndrome, most people offer “have you heard about the book Wonder?!”.

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Posada Delivers in Clutch

By: William Montgomery for Times Herald-Record NEWBURGH — A few hundred Yankees fans gathered at Orange County Choppers on Sunday to wait for an autograph and handshake from Jorge Posada. They brought bats and balls and posters. And it was all for a good cause. Posada was joined by his

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myFace patient Akemi family

Zen and the Art of Cleft Discovery Part 2

In my last piece, I wrote about the different feelings that we experience as parents after finding out our child will be born with a cleft. I mentioned that doing research and coming up with a plan was a crucial part of getting to that place where you can be

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Zen and the Art of Cleft Discovery Part I

By: Shawn Sadjatumwadee Jan 10, 2014. This same date exactly a year ago, I barely had any idea what a cleft lip was and certainly didn’t know what a cleft palate was. We had just found out my wife, Tene, was pregnant with our second child, and started the long

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I am Ellie

By Ellie My name is Ellie, I’m 16 years old and I was born with a craniofacial syndrome called Pfeiffer Syndrome. Because of this, I’ve had multiple surgeries on my skull and face, I had a trach for 6 years and I’ve worn a hearing-aid my entire life. At exactly

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myFace patient Maggie Porcelli

What is Beauty? Ft. Margaret Porcelli

It’s easy to say that we don’t judge people by the physical barrier that we see, but most people have a hard time seeing past what is on the outside. It’s a shame that people are quick to judge based on the structure of one’s face, and the truth is

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myFace patient Ilya Karkover

What is Beauty? Ft. Ilya Karkover

At some point in my law school studies I decided I wanted to be a trial lawyer. More specifically, I wanted to be in front of juries arguing criminal cases. Like some of my television heroes from Law & Order, I relished the idea of passionately stating my case and

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Download TodayCraniofacial Care Guide for Parents

Downloadable content to help parents and families navigate the everyday issues that can accompany life with a craniofacial condition.

Information includes:

  • nutrition needs
  • building self-esteem
  • finding a care team
  • tips for healthcare appointments
  • and more!

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Download the myFace Parent Worksheet

Enter your email address below to receive your copy of our Parent Worksheet to help prepare for your child’s medical appointment.