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The myFace Blog

Reconstruction Aid Gives Hope to Families

By Melanie Gracye West for The Wall Street Journal Laura Posada, the wife of former Yankees catcher Jorge Posada, is stepping up to the plate to raise money for children in need of facial-reconstruction surgery. It is a cause particularly close to the Posadas. Their oldest child, Jorge Jr., was

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myFace blog Priya Singh Delhi

From India to New York: A Toddler Gets a New Face

By Priya Singh, as told to Jordan Davidson, Everyday Health When my son, Maan, was born we noticed his eyes seemed swollen. The doctor told me some swelling was normal after natural childbirth, especially considering how heavy Maan was – 4 kilograms (almost 9 pounds). My pregnancy had been uneventful.

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Helping Children born with Facial Deformities

Exactly one year ago WABC meteorologist Amy Freeze shared the following: NEW JERSEY — A local family in New Jersey is celebrating the relief and hope given to them by the National Foundation for Facial Reconstruction. Defects that might shame a child – a crooked smile, bulging eyes or a

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Inner Faces

Let’s Face the Music by Dina Zuckerberg Over 20 years ago, I was invited to attend a support group for Teen/Adults by an adult patient at The myFace Center (formerly known as the IRPS) who I met at a party. Adamant that I attend, she even offered to meet me

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myFace violet on broadway

Violet and myFace on Broadway

myFace was invited to Broadway to participate in the Round about production of Violet on Sunday, June 1, 2014. Starring two-time Tony Award® winner Sutton Foster, Violet the musical is about a young woman with a facial difference and her journey to self-acceptance. my-Face staff, Board Members, patients and families

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Hakuna Matata: Elijah and the Evans Family

Have you ever looked back and thought, “Wow, my life looks so different than it did this time last year!”? That’s us…the Evans Family. My husband Nate and I were trying to finish up our homestudy for domestic adoption this time last year. Fast forward to September, and we were

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myFace patient Kenny

Patient Spotlight: Kenny

As Superstorm Sandy battered New York City on October 29, 2012, Kenny, diagnosed in utero with a bilateral cleft lip and palate and Mosaic Trisomy 16, was delivered via emergency C-section. At 2.1 pounds, Kenny was one of the four newborn babies born that day who relied on respirators to

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Nathaniel Newman and Jack

Patient Spotlight: Nathaniel

A decade! An entire decade has passed since Nathaniel joined us on February 7th, 2004. With no in utero diagnosis, Nathaniel’s birth was both a joyous moment and a moment of utter fear and panic. Born at a New York area hospital not quite equipped to handle what was later

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Patient Spotlight: Gabriel

Upon Gabriel’s birth, instead of an eruption of cheers as with their first two sons, Sandra and Freddy were met with silence. Finally, after a long pause, they were told that Gabriel had “a little something in his mouth and nose”—that little something was a complete bilateral cleft lip and

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myFace patient Nathaniel Newman and his family

What’s in a name?

What’s in a name? That which we call a rose By any other name would smell as sweet; – Romeo & Juliet (2.1. 43-44) Whether forced upon you by some required college coursework or if you’re a scholar of English Literature, we have all at some point in our life

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Download TodayCraniofacial Care Guide for Parents

Downloadable content to help parents and families navigate the everyday issues that can accompany life with a craniofacial condition.

Information includes:

  • nutrition needs
  • building self-esteem
  • finding a care team
  • tips for healthcare appointments
  • and more!

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Download the myFace Parent Worksheet

Enter your email address below to receive your copy of our Parent Worksheet to help prepare for your child’s medical appointment.