Laura and Malcolm Beeler are so grateful to myFace for being able to stay in the myFace Apartments over the years while they’ve sought treatment for their daughter, Ava. Now 18, Ava was born with Pfeiffer Syndrome and a cloverleaf skull, a rare and complex craniofacial condition which presented a
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Emily is not your ordinary 24-year-old. In fact, she’s quite extraordinary. Emily was born with a rare craniofacial condition called Apert Syndrome causing her facial, skull bones and digits to fuse together too early in development. She’s had so many surgeries to date she doesn’t even remember all of them.
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Providing complimentary accommodations to out-of-town families seeking craniofacial treatment in NYC is one of the many important services myFace offers to families. We work directly with our families on securing the reservations and making sure they have everything they need once they arrive to make their stay as comfortable, and
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Cameradery is a student-run program at Cornell University that brings young people together to appreciate – and enjoy – the art of photography through creative expression and interaction. In this safe and imaginative space, Cornell students partner with youth of all backgrounds where they collaborate and work to reveal the
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myFace, along with 47 leading nonprofits and medical organizations, signed on to a letter from the Friends of the National Institute of Dental and Craniofacial Research (NIDCR) to the House Appropriations Committee requesting funding for the NIDCR and National Institutes of Health (NIH). The NIDCR is the largest institution dedicated
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Ezra Kahn is not just any typical 15-year-old. He has a unique sense of empathy, patience and compassion for a young man his age. He also plays the cello, sings, and dances, and is a star gymnast to boot. His experience growing up with Pierre Robin Sequence has helped him
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My brother, Kyle, was born with a very rare condition called Nablus Syndrome. There are less than 15 documented cases in the world. It is a microdeletion of the chromosome 8q22 and is characterized as a mask-like facial appearance along with other distinct malformations of the body. As Kyle’s older
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myFace is proud to be part of an alliance of 35 global NGO’s and nonprofits working to advocate acceptance for those withfacial differences. This May 17-24th, we come together for International Face Equality Week, a global annual campaign that celebrates the craniofacial community, highlights issues they face and advocates
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In case you missed our post for #WorldPoetryDay, myFace Star, Jasmine Stewart, shares a poem she wrote called “Fresh Eyes” on loving the skin you’re in. a message we actively promote at myFace. Jasmine was born with a cleft lip and palate and has had several surgeries throughout her childhood
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myFace salutes Dina Zuckerberg, myFace’s Director of Family Programs, who received the Family Services Leadership Award from the American Cleft-Palate Craniofacial Association (ACPA) as part of their 2021 Virtual Annual Meeting. Dina has often said, “I bring my life experience of growing up with a craniofacial difference to the programs
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By making a donation to myFace, you enable us to continue our mission of providing quality comprehensive craniofacial care and support, as well as education and information that empower patients, families and the greater craniofacial community, enabling them to lead full and productive lives.
