Tagged as: Síndrome de Crouzon

Summer 2022 Newsletter

Click here to download a PDF version of the Summer 2022 Newsletter   Dear Reader, As we approach the end of summer, I am so excited to share all that we have been able to accomplish, thanks to your generosity. I hope you enjoy reading this issue of the YOUR

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Spring 2022 Newsletter

To download a PDF of the Spring 2022 Newsletter, click here. Dear Reader, As Spring approaches – the season of growth and renewal – we reflect on how much our organization and community have evolved, thanks to your continued generosity and support. Our mission to be a safe haven that

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myFace blog more than meets the eye

More Than Meets the Eye

  Lauren Sharaby shares her story   Unlike most children, I was unable to commit to dance classes, gymnastic lessons, or the cheerleading squad. Instead, I was committed to being a patient. 16 years ago, my parents and I left our home at 5am for my first major surgery at

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myFace blog Priya Singh Delhi

From India to New York: A Toddler Gets a New Face

By Priya Singh, as told to Jordan Davidson, Everyday Health When my son, Maan, was born we noticed his eyes seemed swollen. The doctor told me some swelling was normal after natural childbirth, especially considering how heavy Maan was – 4 kilograms (almost 9 pounds). My pregnancy had been uneventful.

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