myFace, myStory: Taking Control of the Narrative

Podcast Release Date: September 15, 2024

This podcast is made possible through support from the Integra Foundation, committed to improving lives.

On this month’s myFace, myStory podcast episode host, Dina Zuckerberg, is joined by Amy and Lazer Schefer, a dynamic mother-daughter duo who have turned their personal challenges into a mission of advocacy and support for the craniofacial and rare disease communities. Join us as we explore their inspiring story of resilience, the challenges they’ve overcome, and the impact they continue to make on the lives of others.

Read about our guest below the video:

Lazer Schefer is a 20-year old patient advocate and public speaker with Goldenhar Syndrome, and has appeared on the TLC series, 2 in a Million: A Face Like Mine. She has also appeared on numerous podcasts and radio interviews and has moderated panel discussions at Seattle Children’s Hospital.

Amy Schefer is a passionate advocate for the craniofacial and rare disease communities. She is Lazer’s Mom and the director of AdvocateAngel, an organization that helps guide families through the medical maze. Sher shares her intense journey as medical mom navigating with Lazer through dozens of surgeries and challenges, to engaging in pioneering research efforts and advocating tirelessly in one-on-one family assistance endeavors and in legislative action.